WALK TO END LUPUS NOW | Southern Illinois Photographer Living With Lupus

May 09, 2016  •  4 Comments

WALK TO END LUPUS NOW  |  Southern Illinois Photographer Living With Lupus

Lupus Foundation of America  |  St.Louis Heartland Chapter

 

Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0055Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0055

This weekend has left me speechless so I will do my best.  It is very hard to put into words what this has all meant to me & my family.  I have never felt so loved in my entire life.  It all started because my husband decided to surprise me by making a team and signing us up to walk in the St.Louis Heartland Chapter.  When I found out I was absolutely amazed at his giving heart & how he spent hours upon hours working on fundraising, t-shirts, fish fry, organizing, and just pouring in so much love into this.  He truly is a gift & I do not know what I would do without him.  Devoted is the word that I would use to describe him & I am so thankful for all of the sacrifices he has made for me when he didn't have to.  He has given to me so selflessly, regardless of what I've been able to give him in return.  He also got all of my family & friends involved who each went out of their way to raise & donate money to the Lupus Foundation of America in hopes of finding a cure. 56 people came to walk......56.   Each person has really touched my heart so deeply that they would care enough to support me in this way.  For that I am forever grateful.  I hope I to be able to do this each year and bring more awareness to this awful disease so that others will never have to experience it themselves.  

Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0052Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0052

One of my greatest supporters...my son Axel.  He has taken care of me from the beginning.  I don't think he will ever know how much he has meant to me or how strong he has made me when I didn't think I could carry on.  He is much wiser & stronger than most.

Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0056Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0056

We were asked to join in and help with a video they are making for the Lupus Foundation of America...being interviewed is NOT my thing but we made it through.  I couldn't have done it without him! ​

Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0054Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0054

Jonathan & my Aunt Rachel each won a trailblazer award for raising over $1000 each.  As a team we raised over $5000.  We came in 2nd place & there were over 130 teams participating.  I'd say we had a pretty great start!

Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0053Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0053

A special THANK YOU to Lisa Rapp (my studio wife) for coming & photographing this experience for us.  You are such a blessing to me & I appreciate your time & talent so very much.

Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0060Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0060

Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0058Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0058

My family never ceases to amaze me.  Each of my siblings and their families along with aunts, uncles, cousins, nieces, nephews....they are supportive on a daily basis.  My parents have never doubted me & have always been the first in line to see that I get whatever I need with my treatments.  They have fought relentlessly for me.  I am incredibly blessed to have them as I realize not everyone is so lucky.

Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0059Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0059

As some of you may know, Lupus runs in my fathers side of the family.  From a Great Grandmother Rosa, Great Aunt Rosalee, Cousin Beckie, & my beautiful Grandmother Minnie (whom was not officially diagnosed but had all of the same symptoms.)  I would love to end the cycle of this disease in our family & help find a cure.  Thank you for sharing in that HOPE.  

Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0057Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0057 Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0062Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0062 Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0061Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0061 Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0065Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0065 Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0064Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0064 Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0063Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0063

Afterwards we celebrated at Chevys in Ofallon, IL.  I have to say they were AMAZING!!!  

Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0066Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0066 I will continue this fight as long as the good Lord sees fit & I will not give up.  I have a lot to fight for & I want to make y'all proud.  

 

 

 

IF THEY HUMBLE THEMSELVES BEFORE ME

THEN WILL I MAKE WEAK THINGS BECOME STRONG.  

ESTHER 12:27

 

 

 

 


Comments

Leslie Jovanni(non-registered)
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Lisa George(non-registered)
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joel lisa(non-registered)
Am Lisa by name, i was diagnosed with Herpes for 3years ago i lived in pain with the knowledge that i wasn't going to ever be well again i contacted so many herbal doctors on this issue and wasted a large sum of money but my condition never got better i was determined to get my life back so one day i saw mr Brown post on how Dr Aba saved him from the VIRUS with his herbal medicine i contacted Dr Aba on his email address dr.abaherbalhome@gmail.com we spoke on the issue i told him all that i went through and he told me not to worry that everything will be fine again so he prepared the medicine and send it to me through courier service and told me how to use it,after 14days of usage I went to see the doctor for test ,then the result was negative,am the happiest woman on earth now. this testimony is real.thanks to Dr Aba God bless you. you can also reach him on his whatsApp number +2348107155060
Valeria Harmon(non-registered)
You never cease to amaze me. It was an amazing time.
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