WALK TO END LUPUS NOW | Southern Illinois Photographer Living With Lupus

May 09, 2016  •  2 Comments

WALK TO END LUPUS NOW  |  Southern Illinois Photographer Living With Lupus

Lupus Foundation of America  |  St.Louis Heartland Chapter

 

Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0055Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0055

This weekend has left me speechless so I will do my best.  It is very hard to put into words what this has all meant to me & my family.  I have never felt so loved in my entire life.  It all started because my husband decided to surprise me by making a team and signing us up to walk in the St.Louis Heartland Chapter.  When I found out I was absolutely amazed at his giving heart & how he spent hours upon hours working on fundraising, t-shirts, fish fry, organizing, and just pouring in so much love into this.  He truly is a gift & I do not know what I would do without him.  Devoted is the word that I would use to describe him & I am so thankful for all of the sacrifices he has made for me when he didn't have to.  He has given to me so selflessly, regardless of what I've been able to give him in return.  He also got all of my family & friends involved who each went out of their way to raise & donate money to the Lupus Foundation of America in hopes of finding a cure. 56 people came to walk......56.   Each person has really touched my heart so deeply that they would care enough to support me in this way.  For that I am forever grateful.  I hope I to be able to do this each year and bring more awareness to this awful disease so that others will never have to experience it themselves.  

Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0052Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0052

One of my greatest supporters...my son Axel.  He has taken care of me from the beginning.  I don't think he will ever know how much he has meant to me or how strong he has made me when I didn't think I could carry on.  He is much wiser & stronger than most.

Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0056Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0056

We were asked to join in and help with a video they are making for the Lupus Foundation of America...being interviewed is NOT my thing but we made it through.  I couldn't have done it without him! ​

Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0054Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0054

Jonathan & my Aunt Rachel each won a trailblazer award for raising over $1000 each.  As a team we raised over $5000.  We came in 2nd place & there were over 130 teams participating.  I'd say we had a pretty great start!

Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0053Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0053

A special THANK YOU to Lisa Rapp (my studio wife) for coming & photographing this experience for us.  You are such a blessing to me & I appreciate your time & talent so very much.

Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0060Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0060

Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0058Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0058

My family never ceases to amaze me.  Each of my siblings and their families along with aunts, uncles, cousins, nieces, nephews....they are supportive on a daily basis.  My parents have never doubted me & have always been the first in line to see that I get whatever I need with my treatments.  They have fought relentlessly for me.  I am incredibly blessed to have them as I realize not everyone is so lucky.

Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0059Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0059

As some of you may know, Lupus runs in my fathers side of the family.  From a Great Grandmother Rosa, Great Aunt Rosalee, Cousin Beckie, & my beautiful Grandmother Minnie (whom was not officially diagnosed but had all of the same symptoms.)  I would love to end the cycle of this disease in our family & help find a cure.  Thank you for sharing in that HOPE.  

Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0057Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0057 Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0062Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0062 Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0061Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0061 Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0065Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0065 Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0064Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0064 Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0063Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0063

Afterwards we celebrated at Chevys in Ofallon, IL.  I have to say they were AMAZING!!!  

Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0066Southern Illinios Wedding Engagement and Senior Photographer, Southern Indiana and Illinois Photography,_0066 I will continue this fight as long as the good Lord sees fit & I will not give up.  I have a lot to fight for & I want to make y'all proud.  

 

 

 

IF THEY HUMBLE THEMSELVES BEFORE ME

THEN WILL I MAKE WEAK THINGS BECOME STRONG.  

ESTHER 12:27

 

 

 

 


Comments

Susan Lynn(non-registered)
Hello Everyone, I had Lupus as well and I was at the point of getting confused in life because it was really making me feel unsettled. But I came across a testimony of a lady on how she was introduced to a herbal doctor called Dr Ighodalo by her cousin's friend when i was on a research but i never thought this could cure my Lupus. I decided to give it a try and i contacted the mail of the doctor she placed on her testimony via dr.ighodalocuringhome@gmail.com and i got a reply immediately i messaged him, I followed his instructions and did all he asked me to do and apply the remedy he sent for me as he instructed and now am cured totally and really happy to be a free person again. So i decided to share my experience because i believe that there are still lives out there that really needs to get out of this Lupus diseases please you can get in touch with Dr IGHODALO immediately to help you get cured totally via dr.ighodalocuringhome@gmail.com thank you
Valeria Harmon(non-registered)
You never cease to amaze me. It was an amazing time.
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